Not that anyone ever looks forward to Cold & Flu season, but we especially don't. We made it through the last one just barely with Ethan in the hospital twice, once with Brochialitis and once for a bad cold. We spent a total of 13 days in the hospital between March and May ending our stay on Mother's Day.
This year Ethan will have to get monthly Synagis shots between October and April to reduce his chances of getting RSV. I hate giving him shots so much mostly because I think it's so much for such a little body. In fact, that's why I space out his vaccination shots over a few weeks each time we go in. That's another story.
Anyways, the Synagis shots only reduces his chances by 55% so we still need to be careful. This summer we were less worried about germs because it seemed like more people were well. But, now that we're headed into the fall all the sickness is coming back.
We worry a lot about being back into the hospital and our biggest worry is the damage that can be done to Ethan's lungs if he gets a bacterial infection. Luckily, he has not had any bacterial infections. His lungs are perfect!
We went to have a weigh in on Friday and he weighed in at 18 lbs 11.5 oz. He's a big boy! He has more than doubled his birth weight which was 8 lbs 9 oz. We are still giving him enzymes to help him digest his food. He will always need the enzymes because he is pancreas insufficient meaning he can't digest his food on his own because his pancreas lacks digestive enzymes that should help him properly digest his food. Ethan's pulmonology team says that we're doing everything the right way and that we are a great example of how successful families can be if they stick to the program. We are very lucky that we found out about his Cystic Fibrosis so early so that we can help prevent damage on his lungs. Of course, we still worry about the future, but I think what gets us through the day is living day by day and moment by moment. I think this has forced me to live in the moment and enjoy Ethan for where he is and who he is.
We are doing very well. Ethan is healthy and a very happy baby. He smiles almost all the time and is very low key, just like his daddy. He loves to squeal and yell like a girl. It's funny sometimes and not so funny other times, like when we're in a restaurant.
Despite being worried about Cold and Flu season, all we can do is hope and pray that he will stay as healthy as he can, try to help prevent him from getting sick and continue doing his treatments.