Wednesday, March 31, 2010

Ethan's Hospital Stay


Sorry it's been awhile since I've posted. We have had a whirlwind life in the last few weeks.
Ethan ended up in the hospital for 8 days a couple weeks ago. He was 25 days old! It ended up that he had Brochialitis. We are still unsure whether the Brochialitis effected Ethan's Cystic Fibrosis. It could be that he just caught a virus that turned into Brochialitis and the Cystic Fibrosis wasn't an added problem. We both had staph infections from breastfeeding and he had thrush. He recovered quickly and after 8 days in the hospital he was sent home with nebulizer treatments and antibiotics. Thankfully, 4 days after coming home he was able to stop the nebulizer treatments. The doctor had us giving him nebulizer treatments 4x during the day. Each treatment would take 30-40 minutes with chest percussion on his back and front to loosen up whatever mucus was left in his lungs. Since Ken went back to work 2 days after Ethan came home from the hospital, I was on my own. It was really overwhelming when added to his normal feedings, medication and the lack of sleep that I have come to find normal.
We were really lucky to have my mom, sister and Ken's mom each take a night at the hospital so we could get a full nights sleep. Ken and I each stayed 2 nights. We learned a lot in the hospital about what to expect in the future. We should expect to have a hospital stay once a year with Ethan. We learned how to do chest percussion, which is done with a plastic circular instrument by thumping on his chest and back. It sounds like it would hurt him, but he loves it! We also heard stories about families that become noncompliant with doing treatments at home. We are going to have to make a routine and hopefully Ethan will never know any different and will cooperate.
Ethan is still a bit congested at night, but he is pretty much 100% and back to himself. He's been smiling a lot and even laughing. He loves it when we talk in low and high pitches. He also loves fans and clocks. When he sees either one he beams.
He will be 6 weeks old tomorrow and last time he was at the doctors office he weighed in at 9 lbs 12 oz and 21 1/4 inches. He's growing so fast!
Here are some current pictures, including a pic from his hospital stay.



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