Big boy

Right now I'm sitting at my desk watching my big boy do his 30th TOBI nebulizer while he watching Sesame Street for the billionth time. He's been on TOBI for 2 weeks so far. We have 10 more weeks to go. It seems like a long time but we'll get through it. He has about 140 more TOBI treatments before we're finished in June. All I can say is my kid is fighter. He's strong willed which I think is a great trait to have when you are looking at a life where you're going to need to fight something as horrible as CF.

He's such a good little boy! For the most part he doesn't complain about the treatments. Every once and a while we'll find him running away from the couch, where we do treatments, but most of the time he willingly gets up on the couch for his treatments. I'm so proud of him.

We finished the oral antibiotic Cipro last night. We were happy because about halfway through he started having a horrible diaper rash. It was nothing Desitin couldn't cure :)

We are hanging in there as a family. It's been a struggle and I know it will continue to be a struggle but we've all come together. I hope that my friends and family are more aware of what Cystic Fibrosis is and how serious it can be. It's been scary, but we are optimistic and can't wait for the day that we know that we've kicked Pseudomonas to the curb!

On that day Ethan will get almost an hour and half of his day back. He'll have a little freedom from nebulizers and extra vest treatments. I can't wait! June here we come.

Thank you for your prayers and words of encouragement. They help more than you could know.