Day 13

Day 13 - Early report

We just heard from the doctor that the preliminary result showed NO pseudomonas!!! It still could grow but we feel like we're at least on the right path to getting rid of it for good. We'll know more on Monday or Tuesday.

Day 13

Even on the morning I could've slept in and come in later since Ken was at the hospital and had his brother coming to help I was wide awake at 6am and ready to head to the hospital by 815. I missed Ethan.

This morning it was great to meet up with another CF mom who's son is also admitted at Camp Kaiser this week. It was great to share our experiences, especially since we go through a lot of the same struggles on a daily basis. We're both hoping to be released next week and headed back to some kind of normalcy.

I ordered Ethan some items for lunch and dinner that were off the specialty menu thinking maybe I could entice him to eat something different. When lunch arrived I didn't know what it was. I asked and she said it was chopped hamburger. I had ordered a cheeseburger. FAIL!

At dinner in place of the hot dog I ordered a beef filet came instead. I was frustrated because one mistake was understandable but two in one day. Luckily, they always have a few meals on the floor available so Ethan got mac 'n cheese which he promptly refused. He ended up eating some PB&J and his usual milk.

We had to shoo a few people out of the room during nap time so Ethan could get his 2 1/2 hour nap before respiratory came in.

Ken and I left a little after 6pm. Ken's dad is staying with Ethan tonight. We decided despite the huge amount of money we have spent on eating out over the last week and a half that we needed a date night so we headed to the Spaghetti Factory for dinner. All this eating out has not been good for me. I'm sure my doctor is going to be upset with me when I hop on the scale at my next appointment. Yikes! Ken has somehow lost weight.

I'm headed upstairs and we do it all over again tomorrow. Hopefully we can stop these long posts really soon and get back to normal.