Today Ethan and I headed to Kaiser for his first Synagis shot of the season, well he had two shots of it because he's such a big boy. He weighed in at 21 lbs 1 oz!!! The nurse said he is not your typical CF baby. He's huge! She said that compared to when he was supposed to come in March for a shot, she expected him to be small, but was pleasantly surprised that he is doing so well. She mentioned something about how he might have mild CF. According to our doctors CF is a luck of the draw thing. The more bacterial infections you have the worse your lung function is. It's not about having a mild form of it. I tend to lean towards what our doctors say and not the nurses giving the shots.
Anyways, Ethan got his shot(s) and we got another lecture on where to allow Ethan to go. Here is my list and instructions:
KEEP YOUR BABY HOME (until the end of May)
*Avoid airline travel
*Avoid large holiday gatherings
*No daycare, no church nurseries, etc.
*No ear piercing or studio photos
*Avoid malls, shopping centers, movie theaters, etc
*Keep sick people away from your baby
*Keep your baby covered, in the stroller or car seat, with a blanket when you need to bring them to Kaiser or other public areas.
The nurse also told us we basically can't go to Thanksgiving unless we don't bring Ethan. Right, like we're going to do that. She makes a good point that children between the ages of 2 and 5 are germ magnets. My niece is two. How am I supposed to keep Ethan away from her until May? She loves him and he loves her. Ken and I are upset again by the drastic measures we are supposed to go to keep him healthy. It seems like an impossible thing to do or at least that's what the list leaves me feeling like. As I said in my prior post, we'll keep him out as much as we can but we can't live in a bubble.
Every four weeks we'll be doing this all over again through April...we'll see how that goes.
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